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Pregnancy brings physical, emotional, and economic challenges for expectant parent(s), close relatives, and friends. Existing technology support, including tracking technology, largely targets pregnant people and ignores other stakeholders. We therefore lack an understanding of how to approach designing collaborative pregnancy tracking technology. To understand how people collaborate around pregnancy tracking and wish to do so, we interviewed 13 pregnant people and 11 non-pregnant stakeholders in the U.S., including partners, friends, and grandparents-to-be. We find that people collaborate for goals like social bonding and jointly managing various pregnancy data. Stakeholders collaborated by either dividing up data types or collectively monitoring the same information. We also identify tensions and challenges, such as pregnant people’s privacy concerns and stakeholders’ varied levels of interest in tracking. In light of socio-cultural norms and stakeholders’ distinctive roles around pregnancy, we point to opportunities for designing collaborative technology that aligns with as well as challenges socio-cultural practices around pregnancy tracking.more » « less
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Pregnancy is a significant but stressful life transition, requiring effort from multiple stakeholders including expectant parents, family members, and friends to navigate. Existing work has primarily focused on understanding and supporting the technology use of pregnant people, neglecting other stakeholders' needs and participation. We therefore consider how pregnancy tracking apps both improve and interfere with the reconfiguration of social relationships caused by pregnancy, drawing on insights from family sociology to examine how these relationships evolve over pregnancy and the transition to parenthood. We reviewed the features of 20 pregnancy tracking apps, and analyzed 4,709 public reviews of them, finding that stakeholders used apps to bond with one another around the excitement of pregnancy, build a prenatal relationship with the fetus, and co-manage pregnancy-related logistical tasks. We find that not accounting for fetal demographics and users' identities, along with socio-cultural norms around gender and parenting roles, often inhibit these collaborative practices. We therefore suggest designing collaborative pregnancy tracking technology that considers both inclusiveness and specificity regarding stakeholders' different roles and relationships to pregnancy.more » « less
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Recently, there has been a proliferation of personal health applications describing to use Artificial Intelligence (AI) to assist health consumers in making health decisions based on their data and algorithmic outputs. However, it is still unclear how such descriptions influence individuals' perceptions of such apps and their recommendations. We therefore investigate how current AI descriptions influence individuals' attitudes towards algorithmic recommendations in fertility self-tracking through a simulated study using three versions of a fertility app. We found that participants preferred AI descriptions with explanation, which they perceived as more accurate and trustworthy. Nevertheless, they were unwilling to rely on these apps for high-stakes goals because of the potential consequences of a failure. We then discuss the importance of health goals for AI acceptance, how literacy and assumptions influence perceptions of AI descriptions and explanations, and the limitations of transparency in the context of algorithmic decision-making for personal health.more » « less
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Family informatics often uses shared data dashboards to promote awareness of each other’s health-related behaviors. However, these interfaces often stop short of providing families with needed guidance around how to improve family functioning and health behaviors. We consider the needs of family co-regulation with ADHD children to understand how in-home displays can support family well-being. We conducted three co-design sessions with each of eight families with ADHD children who had used a smartwatch for self-tracking. Results indicate that situated displays could nudge families to jointly use their data for learning and skill-building. Accommodating individual needs and preferences when family members are alone is also important, particularly to support parents exploring their co-regulation role, and assisting children with data interpretation and guidance on self and co-regulation. We discuss opportunities for displays to nurture multiple intents of use, such as joint or independent use, while potentially connecting with external expertise.more » « less
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People often face barriers to selecting self-tracking tools that support their goals and needs, resulting in tools not meeting their expectations and ultimately abandonment. We therefore examine how people approach selecting self-tracking apps and investigate how technology can better support the process. Drawing on past literature on how people select and perceive the features of commercial and research tracking tools, we surface seven attributes people consider during selection, and design a low-fidelity prototype of an app store that highlights these attributes. We then conduct semi-structured interviews with 18 participants to further investigate what people consider during selection, how people select self-tracking apps, and how surfacing tracking-related attributes could better support selection. We find that people often prioritize features related to self-tracking during selection, such as approaches to collecting and reflecting on data, and trial apps to determine whether they would suit their needs. Our results also show potential for technology surfacing how apps support tracking to reduce barriers to selection. We discuss future opportunities for improving self-tracking app selection, such as ways to enhance existing self-tracking app distribution platforms to enable people to filter and search apps by desirable features.more » « less
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People often turn to online health communities (OHCs) for peer support on their specific medical conditions and health-related concerns. Over time, core members in OHCs build a shared understanding of the medical conditions they support. Although prior work has studied how individuals function differently in active sensemaking mode compared to habitual mode, little is known about how OHCs disseminate their advice once their core members operate primarily in habitual mode. We qualitatively observe one such OHC, 'Surviving Antidepressants', to understand how collectively-built protocols are disseminated in the important domain of discontinuing psychiatric drugs. Psychiatric drugs are widely prescribed to treat mental health diagnoses, but, in certain cases, discontinuation might be clinically advisable. Unfortunately, some people experience severe withdrawal symptoms upon discontinuation, even when following medical advice, and thus turn to OHCs for support. We find that collectively-built protocols resemble medical advice and are delivered in a top-down fashion, with staff members being the primary source of informational support. In contrast, all members provide emotional support and exchange advice on navigating the medical system, while many express their distrust of the medical community and pharmaceutical companies. We also discuss the implications of OHCs offering advice outside of the medical system and offer suggestions for how OHCs can collaborate with healthcare providers to advance scientific knowledge and better support people living with medical conditions.more » « less
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